@med951 It is difficult finding the correct doctors, isn’t it? I hope this information will help. These two programs are non-governmental and exist for autoimmune patients! And others who would like the help.
GARD. Organization of genetic and rare diseases
https://rarediseases.info.nih.gov/.
NORD. National organization for rare diseases
https://rarediseases.org/
They keep a list of doctors in each state. You may have to drive. Just give them a call!