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Feeding tube removal

Head & Neck Cancer | Last Active: Sep 6, 2017 | Replies (9)

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Wondering if any of you have tried blenderized foods in tube feeding? My husband is on dialysis and has cancer. The doctor prescribed Nepro for dialysis patients - 4x per day. Husband is against using anything other than the canned formula. He fears clogging the tube. I say he needs SOME real food.

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Replies to "@kimf, @geezer, @undiagnosedsickgirl, @mroreo126, @franknick, @ej9718, @rsinger22, @kathyzendner, @mswanda, @dbennett, @kirsty281, @maggee, @dicknlou, @lee28 and @lisab..."

That's a great question. I was curious about that myself when I first started using a feeding tube.

I did quite a bit of research about the food that I put into my tube. Because it didn't have to taste good, I wanted it to be as nutritious as possible. I ended up bringing my own formula to the hospital prior to major oral surgery. Initially the nutritionist was not on board. She only knew the standard formulas out there, and mine was unfamiliar. I had to advocate for myself in this situation, working with her to come to an agreement. This is a decision you have to make with the doctor/nutritionist. I am not familiar with the needs of dialysis patients. Are there any restrictions to what your husband can or cannot eat?

Regarding the real food, I began juicing because I was worried about clogging my tube too. Juicing made me feel like I was getting some needed nutrients without the worry of the tube getting plugged. As I grew braver, I moved onto baby food. This worked really well for me! It was especially great for traveling or getting hungry while out in public. I would open a squeezable packet and water it down a bit. It went into my tube really well, and I never had an issue. Once I got more comfortable, I did end up blending raw fruits and vegetables in putting them in my tube. Cooking them would make the puree smoother, but I was pretty adept at managing my tube by then. Again, watering down is a must, but it can work!

I think its great that you are encouraging him to get some real food in his body! Again, I would just run things by his doctor to make sure that there are no interactions. Good luck to you! I hope you let us know if you decide to try it!