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Adult daughter with autism, epilepsy, new diagnosis celiac disease
Digestive Health | Last Active: Sep 15 7:08pm | Replies (18)Comment receiving replies
My 50 year old nonverbal autistic daughter, epileptic, sigmoidectomy 12/ 24 ,was just tested, dx celiac, also iga deficiency dx ,so many new diagnoses!Maybe the surgery triggered the celiac as symptoms, behavior much worse after but also my research shows lamictal for seizures can lead to iga deficiency !I know I need to copy this to autism, epilepsy, gi support groups , she is nonverbal too, her new diet very hard for her to understand. And she lives in 6 bed residential home so trying to get everyone on board about the food is very hard..If mentors could please post to other groups I would so appreciate it!thank you !
Replies to "My 50 year old nonverbal autistic daughter, epileptic, sigmoidectomy 12/ 24 ,was just tested, dx celiac,..."
@minajo, I added your discussion to the related groups of Autism, Autoimmune, Digestive Health and Epilepsy.
You may also be interested in joining this discussion group:
- Any parents caring for adult children? Let's share https://connect.mayoclinic.org/discussion/any-parents-caring-for-adult-children-lets-share/
I can imagine that managing your daugther's diet, helping her understand what to avoid and ensuring that her carers follow the plan is a real challenge. You can't be everywhere. Would it help to have visual guides? Like a poster of pictures of the favorite foods she can eat?
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@minajo Welcome to the autoimmune diseases support group. And that you have posted on several other groups in hopes that you will reach the right people. The one question I have is are you working with a good dietician? Have you maybe found someone in your neighborhood or church who HAS celiac disease and could help you in person? We’ll hope that someone comes along soon to give you some answer .