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Profile picture for peebs60 @peebs60

I am on the cusp of deciding to have my pump removed. It is either move the catheter higher up ( very scary!! I have so much scar tissue , severe narrowing and more hardware to navigate) or just remove the pump because it's not helping with my cervical pain. It never dawned on me how problematic getting off the pump would become!! Are you on orals? This is my fusion. Are you glad you made this decision? I hate having a pump in my body. It actually hurts where they put it. It's too big and it rubs in some painful places . I also fear mechanical failure!!!
I pray you get relief soon!!!!

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Replies to "I am on the cusp of deciding to have my pump removed. It is either move..."

@peebs60

I am very happy that I’ve had the pump removed.. So far. I am on orals but only four Norco 5/325 a day. But I am basically pain free at this point. Just the withdrawals are my issue. The intermittent withdrawal symptoms I experienced over the years with the pump were horrible. I was on a pretty low dose intrathecally; .68 mg / 24 hrs and four small bolus’s as needed. I understand your predicament. I only have eight levels fused in my spine. Yours is significantly more. I hope you have good doctors and can get a second or even third opinion on your best plan moving forward. I hope you find a solution that offers comfort.