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New here. Have this Post Covid for over 5 years. I need help desperate
Post-COVID Recovery & COVID-19 | Last Active: Sep 17 11:01am | Replies (32)Comment receiving replies
@lkirnbauer
Hi, interesting to hear of your experience with SGB’s
What type of provider helped to get those in place for you?
I have 4 years of Long Covid symptoms and diagnosis with multiple systems affected
Now have autoimmune Sjogren's Disease, neuromuscular damage, GI dysfunction and dysbiosis, likely dysautonomia and trying to obtain referral for MCAS specialist
My symptoms have become worse over time, despite pacing, walking 10-12 miles/week at a walking pace and seeing a multitude of doctors, many who are content to throw their hands up and say
“we don’t treat Long Covid” as to absolve them from care!
So much for having complex health issues that the medical world will help you with!
My only improvement came 6 months ago when I began with an Integrative Medical provider and was recommended high grade, third party tested Curcumin Supplement
1,000-1,500mg/day that has helped with some of the systemic inflammation and mostly with swelling and burning pain that had been in both legs for nearly 3 years
I haven’t come across very many long Covid suffers who have improved so any word of some improvement in fellow on Covid people is encouraging
Wish you continued improve improvement and better days
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@tiredoflc I’m sorry you’re suffering with this dreadful disease. As I mentioned above, I had 7 Stellate Ganglion Block Injections over a period of time (every 3 to 4 months). I had them done at Northwestern Chicago, in their Pain Management Clinic. They are guided injections through an ultrasound so they can see exactly where they’re injecting. I tolerated them well, no real pain, just a little pinch like a shot. My body finally stopped tremoring after I had the 7th one. I don’t know if it will help you, but my insurance covered these procedures and I’m on Medicare/AARP. Could be worth a try as I know what it’s like to want to feel normal again. Also, what helped me a lot was eliminating gluten, dairy, soy, sugar and seed oils. They are inflammatory and will cause inflammation in your body. Also, eating snacks that are in a bag or a box have so many ingredients in them, they are sure to cause inflammation. Try eating clean, nothing from a box or bag, fresh foods that God created. I know it sounds strange, but clean eating has gotten me this far. You’ll also start to feel better by eating clean. Try to stick to this way of eating. I wish you all the best!