JesicaStorms.. All of the comments are right on and a great example of the support you will get from everyone dealing with NETS. My husband's first tumor was in 1995. He was rediagnosed Stage 4 - 28 years later. He, too, has multiple tumors surrounding his brain. We have found over the years that a NETS specialist is most important in dealing with his rare cancer. We have found our NETS specialist and team at Rochester Mayo to be our life line. They explain everything that is happening to his body in terms we can understand. In 1995, there were no treatments. This month he will have his 3rd PRRT treatment. Our prayer is for stabilization. We are so thankful for the research that has happened over the past 30+ years. Today he has the option of a specific treatment that will attack the cancer cells. Your positive attitude will carry you through the tough days that come with dealing with cancer. May God bless you as you take each day at a time.