← Return to Experience with Dr Dan Lin - UW Fred Hutch Cancer Center in Seattle

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Profile picture for gonzaler84 @gonzaler84

Question: did any of you send your questions in advance to the team prior to your initial visit? Reason for asking is that the more heads up provided to the specialists, perhaps they are better prepared to address the questions with data, research or experiences with other patients...I should clarify that given the available potential treatments available based on the current situation this allows the patient time to prepare thoughtful and specific questions. In turn, the specialists having these q's in advance hopefully gives them some time to prep...

Was thinking of this as I'm reading the responses and given the breadth of info available, the discussion could go in lots of directions. Hence focusing the discussion could help ensure a more thoughtful and valuable experience for me...

Appreciate any thoughts you may have on this idea...

Cheers...

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Replies to "Question: did any of you send your questions in advance to the team prior to your..."

@gonzaler84 The treatment recommended will be vastly different for a PSMA PET that is clean vs. one with a few bone spots vs. one that lights up all over. That could make a lot of your questions moot. I do not know these doctors, but many will not review before appointment. They will be looking at biopsy & PET results. It is useful to write out what you want answered so that you can make sure you ask all of the questions. For a first-time appointment there will be very little that they have not seen or heard before. Make sure you voice your wishes about quality vs. quantity of life.