jessicastorms: Nets tumors have been found throughout our bodies, however discouraging this is, there are specific treatments to deal with them. After your tests, it is important to your prognosis that you have a consultation with a NET Specialist to determine best treatment. Regular Oncologists do not have the experience or current treatment techniques to address our rare cancer! For instance I had a PRRT Lutathera treatment at City of Hope 2 yrs ago that targeted all NET tumors in my body that were Seratonin-receptive! It seems like a miracle to have received this tumor specific drug! My result was dramatic tumor reduction. I am so grateful for the expertise NET specialists and the researchers have and are working to find a cure.
I am repeating my story to give you hope and emphasize the importance of a positive attitude while going through treatment! Best to you…