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@trishaanderson Thank you for asking. After 4 psychiatric hospitalizations he now can’t walk and has declined more. Now in skilled care with hospice. Our goals have changed from assisted living to full care. I moved into the independent living so I’m quite close. Medications are a challenge and he was given Haldol at his third place. That made it all worse but maybe he will be more peaceful. Our goals have now changed to comfort care and peace as much as possible. I grieve everyday but on another note have reached a new level of acceptance.,
How about you?
Replies to "@trishaanderson Thank you for asking. After 4 psychiatric hospitalizations he now can’t walk and has declined..."
@maryvc
Oh Mary,
My heart is breaking for the pain you and your dear husband are going through. When you think this horrid disease can't get any worse, it does.
I work every day to try to keep my husband as calm and happy as possible and try to control his agitation, which can flare up at any time. His medication helps, but it's still an awful way to live, knowing it will get worse, not better.
Thinking of you,
Trish
@maryvc Oh, Mary, may God give you strength and peace. Truly you made the correct decision for your husband and for you. I am so sorry that you have reached this point, yet I hope the burden you carry is lighter.
When I read your post last week, I had no words to say. Even though our Mayo Connect is one without meeting each other personally, I feel a strong bond to each person who shares his or her story.🌹
I will pray for your strength and hope all that you have in place brings comfort to both of you.
I have been finding out that acceptance is somewhat liberating from the "flight or fight" reflex that has prevailed. I wish you peace.
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@maryvc
So very, very sorry for what you are both going through. Life can be so hard. It's challenging to see the beauty in life sometimes. Perhaps some of your husband's caregivers are a beautiful thing that help improve his quality of life?
May you find peace in your growing acceptance. 🫂 🌺