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DiscussionNew here. Have this Post Covid for over 5 years. I need help desperate
Post-COVID Recovery & COVID-19 | Last Active: 6 days ago | Replies (32)Comment receiving replies
Replies to "First off, I’m sorry you’re suffering. I have had symptoms of Long Covid for almost 4..."
@lkirnbauer
Hi, interesting to hear of your experience with SGB’s
What type of provider helped to get those in place for you?
I have 4 years of Long Covid symptoms and diagnosis with multiple systems affected
Now have autoimmune Sjogren's Disease, neuromuscular damage, GI dysfunction and dysbiosis, likely dysautonomia and trying to obtain referral for MCAS specialist
My symptoms have become worse over time, despite pacing, walking 10-12 miles/week at a walking pace and seeing a multitude of doctors, many who are content to throw their hands up and say
“we don’t treat Long Covid” as to absolve them from care!
So much for having complex health issues that the medical world will help you with!
My only improvement came 6 months ago when I began with an Integrative Medical provider and was recommended high grade, third party tested Curcumin Supplement
1,000-1,500mg/day that has helped with some of the systemic inflammation and mostly with swelling and burning pain that had been in both legs for nearly 3 years
I haven’t come across very many long Covid suffers who have improved so any word of some improvement in fellow on Covid people is encouraging
Wish you continued improve improvement and better days
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@lkirnbauer Thank you for your reply. Im seeing a new Doctor this week to start over and see if they can find an answer.