← Return to New here. Have this Post Covid for over 5 years. I need help desperate

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First off, I’m sorry you’re suffering. I have had symptoms of Long Covid for almost 4 years now. Most have settled down, but I still don’t have my taste or smell. I had all the things you mentioned, fatigue, not being able to shower too long or I felt faint, stuttering, brain fog, body tremors. I had them all! To help me with fatigue, I started walking in my house, 5 minutes one day, then 10 and so on until now I can walk 3 miles 3 x’s per week. One of the first things I tried was acupuncture. I had about 20 appointments with the acupuncturist and they didn’t really do too much for me. I then approached the Stellate Ganglion Block Injections and read up on them. I decided I needed to try those to help with body tremors as I could hardly walk with both feet on the ground I was so jumpy! I had 7 SGB Injections over a period of time, every 3 to 4 months or so and the 7th one finally took my body tremors away to where I hardly notice them at all anymore. Over the next months and years, other symptoms dissipated and all that’s left now is to get my taste and smell back and try not to overdo things that tire me out. I also have cut out eating gluten, dairy, soy, sugar and seed oils as they are inflammatory foods. It’s overwhelming, but if you take it step by step, it won’t be so overwhelming. One thing and one day at a time…wishing you all the best.

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Replies to "First off, I’m sorry you’re suffering. I have had symptoms of Long Covid for almost 4..."

@lkirnbauer Thank you for your reply. Im seeing a new Doctor this week to start over and see if they can find an answer.

@lkirnbauer
Hi, interesting to hear of your experience with SGB’s
What type of provider helped to get those in place for you?
I have 4 years of Long Covid symptoms and diagnosis with multiple systems affected
Now have autoimmune Sjogren's Disease, neuromuscular damage, GI dysfunction and dysbiosis, likely dysautonomia and trying to obtain referral for MCAS specialist
My symptoms have become worse over time, despite pacing, walking 10-12 miles/week at a walking pace and seeing a multitude of doctors, many who are content to throw their hands up and say
“we don’t treat Long Covid” as to absolve them from care!
So much for having complex health issues that the medical world will help you with!
My only improvement came 6 months ago when I began with an Integrative Medical provider and was recommended high grade, third party tested Curcumin Supplement
1,000-1,500mg/day that has helped with some of the systemic inflammation and mostly with swelling and burning pain that had been in both legs for nearly 3 years
I haven’t come across very many long Covid suffers who have improved so any word of some improvement in fellow on Covid people is encouraging
Wish you continued improve improvement and better days