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lori098 avatar

Should I go on Envenity, Forteo, or wait?

Osteoporosis & Bone Health | Last Active: Sep 13 8:48am | Replies (44)

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Profile picture for boneoptimist @boneoptimist

@nancytheyda , did I already reply to this? Love this forum, but it goes in all directions all at once....Didn't want to leave you hanging, so if I already replied, disregard this.

I'm on Tymlos for 11 months now, at a dose of 5 clicks instead of the full dose of 8 clicks. It took me a while to settle on this dose, and 6 clicks seems to be a tipping point to more side effects, so I stay here with my Dr's unofficial approval. You can titrate any of these drugs if you need to, as you start them, to ease your body into them. I only tried the full dose once at the very beginning and it almost made me quit the drug. I have gone from severe OP to osteopenia in 2.5 years (only the last 11 months on the drug), so progress is really possible.

That said, keep in mind that most of the people posting side effects here are those that are struggling with the side effects. I'd say that a great majority of people do not have any side effects to any drug and hopefully you will be among them!

As you research your drug choice, I do want to add my own caution to fully investigate the biophosphonate (bone savers) class of drugs before you would choose them. My family had bad experiences with them but only years later when it was too late (shattering bones, jaws like Swiss cheese). I recommend a bone builder drug, but do your own research 🙂
Good luck on your journey!

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Replies to "@nancytheyda , did I already reply to this? Love this forum, but it goes in all..."

Thank you so much for taking the extra time to reply. Your perspective and
experience is very much valued and unappreciated. Yes, I do try to keep in
mind that it is often mainly the people who have negative things to say who
speak out.

And that’s great advice on the Tymlos That was the other one on which I
have gone back-and-forth about with my doctor so that may end up being the
route I go.

I understand the importance of acting soon, but I do have a long
international vacation trip to Asia coming up and I’m not going on anything
until after that because I want to enjoy myself side effect, time zone and
refrigeration worry free.

Thank you again and enjoy the weekend!

@boneoptimist the problem regardless is after the bone builder you have to go on bone savers. I will be faced with this in less than a year.