← Return to Experience with Dr Dan Lin - UW Fred Hutch Cancer Center in Seattle

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Profile picture for gonzaler84 @gonzaler84

@dailyeffort Bill, many, many thx for your guidance. I truly appreciate your feedback on Lin together with your other insights. How you describe the initial visit is what is currently planned with me. Lin is one of the 3 that I will meet with on the initial visit.

Did you have your PET scan done before you met with the team for your first visit? The urologist has put an order in but he came back and said it takes a while to secure a date. Current order is to have the scan done at Overlake Hospital. That said, I really want to get it done before initial meeting with Lin and others on Oct 8 so that I can have a more thorough and relevant discussion based on the scan, biopsy and other lab work. I am planning to call Overlake on Tue and also Fred Hutch to see which one can do the test before the first visit.

Lastly, Bill would you be open to a brief chat by phone or email to chat further about your experience at Hutch? If not no worries - I understand.

Ty

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Replies to "@dailyeffort Bill, many, many thx for your guidance. I truly appreciate your feedback on Lin together..."

@gonzaler84 I was able to have the PSMA PET done prior to my initial meetings. If, after checking with Overlake (and UW as well) you are unable to get the scan scheduled ahead of your Oct 8 meeting, I would probably request the initial meeting be rescheduled in the event that they are unable to "pull some strings" to get it scheduled ahead of time.

What was your most recent PSA? What other labs or tests are being done to provide you with additional data upon which you and your doctors can arrive at the best possible treatment decision?

Below are two links that will be of interest:
https://fox5sandiego.com/news/tv-travel-guide-rick-steves-on-road-to-recovery-after-cancer-diagnosis/
https://x.com/RickSteves/status/1893507918563340618
In a later post you mention submitting a list of questions in advance of your appointment. It is a very good idea and is something I always do.

Let me know if you have you been on Mayo Clinic Connecct long enough to send/receive private messages?

Bill