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Neuroendocrine Tumors (NETs) | Last Active: 12 hours ago | Replies (16)

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JesicaStorms
And a storm it is.. I appreciate your description. Thank You.
I find it always harder to not knowing than to start finding a solution or somewhat resolving or learning to accept what is. Feeling especially for you in the waiting time.

It is often hard having people not comprehend or even dismiss this particular type of cancer.
Two months ago I actually had a surgeon say about a concern I had that "Well, it is best to think horses when you hear hoof beats not a Zebra". I thought my husband and I were going to fall out of our chairs. I let out a laugh and he asked "Why?" .. I replied "Because I am a zebra". Click on the small photo below.. We framed it.. Needed it. Thinking of you .. In this together.

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Replies to "JesicaStorms And a storm it is.. I appreciate your description. Thank You. I find it always..."

@maeve115
I need to add that the surgeon looked startled. Then he smiled and both of us appreciated the willingness of each other to learn together. Because of NETs my oncologist wanted me to check out the situation. It felt good that our oncologist, husband and I , and surgeon listened to and shared/ learned together.