completely understand wanting to know exactly what you are facing. Sometimes the uncertainty and waiting for the next scan, blood test, or appointment can be almost as difficult as hearing the results.

One thing I strongly recommend is taking someone you trust with you to your doctor appointments. When you're first dealing with a cancer diagnosis, you're trying to absorb an overwhelming amount of information while you're still in shock. You may think you will remember everything the doctors tell you, but it is very easy to miss or forget important details. Having another person there to listen, take notes, and ask questions can be invaluable.

NETs can be complicated, and you're right that many people don't understand how serious they can be. Every NET is different depending on where it started, its grade, how fast it is growing, and where it has spread. Having a team that truly specializes in NETs is very important.

I'm glad you already have a palliative care team involved. Palliative care isn't giving up—it is another layer of support to help with symptoms, comfort, and quality of life while your cancer team works on treatment.