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Pain medication changes due to regulations
Chronic Pain | Last Active: Sep 28 1:12pm | Replies (73)Comment receiving replies
I take 3mg LDN as a bridge from prednisone to kevzara for PMR pain. I'm down to 2.5mg prednisone and at 6 weeks I'm only halfway to full effect with kevzara. I take it at night and I know it helps me sleep relatively pain free.
LDN (low-dose naltrexone, typically 1–4.5mg/day) has a growing but still niche role in chronic pain management — used off-label, not FDA-approved for this.
Where it's used:
-Fibromyalgia (the most-studied use)
-Neuropathic pain, complex regional pain syndrome (CRPS)
-Chronic pain associated with multiple sclerosis, Crohn's disease
-Generally tried after standard treatments haven't worked well enough
If you're in pain, it may be worth discussing with your doctor to see if it's an option. It's one of those cumulative effect options so pain reduction may be gradual at first. Anyone trying it should give it 90 days before judging it's effectiveness. Insurance doesn't cover it and it requires a compounding pharmacy, but I pay $110 for 90 days at a local compounding pharmacy. Online compounding pharmacies are in the $80 range for 90 days supply.
Replies to "I take 3mg LDN as a bridge from prednisone to kevzara for PMR pain. I'm down..."
@kjoed53
What is a "compounding pharmacy" ??
@kjoed53 how has it worked for you and what are you treating? My pain specialist has suggested we try and I'm seeking feedback from those who have given it a try.
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@kjoed53 I asked about LDN but was told I wasn't a good candidate for it since I don't have the conditions it's listed for.
I have to take Hydrocodone 10:325 as needed. I'm emphasizing the last part. I don't get any "buzz" from it except pain relief.
I have stuff with my tendons, a failed TKR which I had a PNS put in after four years of that and it has helped a lot.
I can get awful headaches but it's mainly things that are from being hyper mobile. Torn ligaments, tendons and arthritis but at least it's "only" osteo, not rheumatoid.
I do PT for these but it can be a question of having a terrible day to having a decent or good one where you can function. Plus PT takes time if you're about to catch a train.
I am still trying to find other solutions, not because I'm afraid of addiction, but it's a hassle to get from some doctors even post op!
I try not to take it since I don't want to build up a tolerance to it though.