My primary physician is at Mayo.
I was diagnosed on August 4 2025. I had no headache or muscle aches, just double vision. It went undiagnosed for 2 weeks. Then finally went to ER. They knew right away. Sed rat and CRP were very high. I had no problem with balance at all.
I have diabetes so the prednisone was bad for me, had to be on a strict diet and use insulin (new for me) Now I'm on methotrexate and Actemera. It is working. One flare in Feb but a few weeks of prednisone and added methotrexate and that worked. I appreciate this group. My rheumatologist at Mayo is great. And has helped me through this journey.