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I recently had surgery to remove NET in small intestine
Neuroendocrine Tumors (NETs) | Last Active: 15 hours ago | Replies (71)Comment receiving replies
@tomrennie Thank you for reaching out. I am slowly adapting my diet according to what I’ve researched that helps. For swelling - not sure. It gets worse throughout the day.
Replies to "@tomrennie Thank you for reaching out. I am slowly adapting my diet according to what I’ve..."
@tara2026 Welcome! I'm pretty new here; diagnosed about 6 wks ago and awaiting surgery on the 30th for a NET of the small intestine. I hope I can keep a positive attitude the way you have!
I imagine you were given instructions at discharge for what to look for and when to call and check in. I've just been hearing if anything seems not to be getting better after discharge, or is getting worse, to contact the clinic. Perhaps your symptoms are just what they told you to expect.
I think it's so helpful to have a care team you trust. I'm glad you do. Let us know how you're doing.
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@tara2026 Do you have a way to call or message your doctors to ask for some suggestions? Maybe something as simple as ice could help, but I am not a doctor. Hopefully, they can help. I wish that I had something more to offer.