I had a lumpectomy with radiation. (IDC, HR+, HER2-, Stage 1, Grade 2, DX age 48)

And if I could go back, I would have insisted on a double mastectomy. I asked, but my surgeon declined, saying that it was a small area and that the surgery would be much easier on me than the recovery for the mastectomy.

I regret every day that I didn't push for a second opinion. But I was so scared being diagnosed with Cancer that I just did whatever they told me because I wanted it out ASAP.

I did not truly understand the lifelong side effects that would come along as a result of the radiation. I have constant painful lymphedema in my breast. As well as painful fibrous tissue, and it hurts every. single. day. Additionally, the radiation damaged all of the lymph nodes in my breast and armpit, as well as my sweat glands and hair follicles. My immune system is diminished, and I don't sweat properly. Even though I put lotion on every day, the radiated area peels like a sunburn, and it's been three years.

I feel like the radiation oncologists glazed over the lifelong side effects. Because it is so common to treat breast cancer with radiation. I was also told that they are not able to radiate the same area twice, so when the cancer returns, my treatment options will be limited.

I'm afraid to travel. Because change in elevation can cause my lymphedema to spread down my arm. And don't even get me started on the side effects from tamoxifen, or aromatase inhibitors. My quality of life is severely diminished.

Please take the time to do Research for the best options for you. You may need to ask a loved one to help you if it becomes emotionally difficult.

I live with the regret every single day and it breaks my heart.