← Return to Brinsupri experience after 3+ months

Discussion
scoop avatar

Brinsupri experience after 3+ months

MAC & Bronchiectasis | Last Active: 10 hours ago | Replies (360)

Comment receiving replies
Profile picture for blm1007blm1007 @blm1007blm1007

@scoop
Oh, good for you Lucky you with that one in particular...."cultures remain negative and I continue to feel well." True, "no reason to subject to radiation."

Yes, it is the one thing I am thinking seriously about, starting the Brinsupri , due to the mucus and mucus plugs that I always have. I must have some deep "pockets" in those damaged lungs of mine with the cause of the nearly constant mucus and mucus plugs.
MAI still remains at a low load. As a matter of fact, I am waiting on the Tyler sputum results in that they kept it longer under 'watch" etc. because they couldn't get anything to fully grow. Going on nine weeks working with it at the lab. They did say Intercellular. All I can do it wait and then ask questions!
I know we don't know much about it, the Brinsupri, in terms of long term and long term usage and possible long term findings/outcomes.
However, again it is that thing called quality of life while living the now and at nearly 84....I think it is time to possibly "go for it." Hard decision with not being on any med's except the saline. Avoided med's all my life until the Bronchiectasis and infection.
Thanks for your response and detail.
Barbara

Jump to this post


Replies to "@scoop Oh, good for you Lucky you with that one in particular...."cultures remain negative and I..."

@blm1007blm1007 Hi Barbara. Has your pulmonologist suggested you try the Brinsupri? I have been on it for six months now and am very pleased with the results. A couple of weeks ago, I caught a bad cold, which usually turns into pneumonia for me because I have colonized pseudomonas. But this time, I recovered in a few days with no antibiotics and no further exacerbation! Hallelujah!

If you don't like it for any reason, you can always stop, right? Good luck with your decision.