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Moderate–Severe Axonal Polyneuropathy: Need help in managing
Neuropathy | Last Active: Sep 5 12:33pm | Replies (3)Comment receiving replies
Hello @rajeshtarakada, welcome to Connect. I see that you found the discussion started by @ray666 and hopefully have read through the discussion to learn what has helped other members with axonal polyneuropathy.
- Axonal peripheral neuropathy: Finally, a diagnosis!: https://connect.mayoclinic.org/discussion/axonal-peripheral-neuropathy-finally-a-diagnosis/.
Tagging @duquer, @carayjoh58, @artemis1886, @njed, and @cap5457 who may be able to share what has helped them. Has your mother's doctor or care team made any recommendations or suggestions on what may help with her being able to walk better?
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Hello, @rajeshtarakada.
I hope I didn't paint too bleak a picture in my reply yesterday. It would have been wrong of me to do so. If my reply was less than 'all wine and roses,' I'd attribute it to yesterday being one of my 'bad' days, but honestly, @rajeshtarakada, my so-called 'bad' days aren't THAT bad; they could certainly be worse. At best, what I was hoping to convey in yesterday's reply is that most strains of peripheral neuropathy have their ups and downs.
I've also learned a crucial lesson in my many months of hanging around Connect: everyone's experience of peripheral neuropathy is different. I've met many people here whose experience is similar, but never a perfect match. You've every reason to keep the faith that your mother's experience will be among the least troublesome.
Once more, I wish you and your mother all the very best!
Ray (@ray666)
@johnbishop