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How to Prepare for Life without an Ileocecal Valve
Neuroendocrine Tumors (NETs) | Last Active: 12 hours ago | Replies (57)Comment receiving replies
@patrick031621 Many thanks for all that information! It's so heartening that some people are able to do most of what they used to. The travel bag sounds like an excellent idea and I plan to have one.
I'm well aware of the additives to many foods and drinks. I'm highly allergic to corn, so I have to check all ingredients. There are a few vegan protein powders which do not have sugar or sweetners. But are perhaps too high in fiber. I plan to eat the safest things at first and then add one at a time to see what I can tolerate. I'm very lactose intolerant, so I'm used to using lactose free dairy. I may try that eventually.
The specter of public incontinence is hard. But I also don't want to become isolated. It'll be trial and error how to deal with this. I'm so grateful for everyone's input!
Replies to "@patrick031621 Many thanks for all that information! It's so heartening that some people are able to..."
@taly
This is what I do when I plan to travel any distance and in fact I did a 400 mile journey just three months ago and back repeating the plan each way.
I eat a hearty meal in the evening but not too late the day before travelling. Then the next morning I eat or drink nothing. Sometime i will have a small cup of coffee to get things started and then I make sure I basically empty my bowels. You know, go to the toilet and have a morning excretion like a lot of people do but I am patient so that I give myself time to basically have my lower intestines pretty empty. You get so you know when this occurs through experience. Then I eat or drink nothing and I do mean nothing. it would be nice to have a cup of coffee on the way but that is a No-no. I often go ten or eleven hours a day that way. my oncologist is 160 miles away and during that time I have while there bloodwork, an MRI , a Cat scan and see him and then I drive or am driven by a son back home. I eat or drink nothing all this time. Psychologically I think of it as my day to fast which is healthy and i know people used to do it for religious purposes so it isn't impossible or that hard. Mind over matter. Recently I tested it out on a journey to see my oncologist hoping things had changed perhaps. I had a Whopper. I thought things were good but a half hour later i had a fast inkling of trouble and before I could get to a restroom I had a slight "accident" and had to use what I call my "bag of tricks" to clean up in the clinic's restroom. No more experiments for me. I hope this helps you. I have had a few awful experiences this way but one has to expect it within an eleven year period. I am 80 years old now and so I have little desire now to travel except to see my oncologist.
P.S. I took that long 400 mile trip only because I wanted to see my hometown and where I grew up one more time in life. I won't be back. Otherwise no travel anymore. Not worth it.
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@taly