I am six years into my long Covid journey and have improved about 50%. I spent the first year and a half bedbound, becoming breathless just walking to the toilet. For me, long Covid affected my autonomic nervous system so my blood pressure, pulse, ability to breathe, sweating, body temperature control, and more was all affected. It also dried up all oil production on my skin, so I have tremendous breakouts and have to constantly use lotion to keep my skin moist. I originally had tremendous post exertion malaise that would affect me for two or three days after exercise and initially , I could only do one thing a day if that. Shower or bathing was also a real problem for me so even bathing once a week became a challenge.The inflammation also caused ongoing pain in all of my joints, and the neuro inflammation made it very difficult to think depending on the situation I was in and how tired I was.

I have been on low-Dose naltrexone for about nine months now and it has really changed my life. I can now walk about 7/10 of a mile every day without crashing, I can function until about 1 o’clock in the afternoon without napping, and I can get up about 4 o’clock and make dinner and stay up until about seven without having to go to bed. I can now shower without being exhausted for the rest of the day, which is really a blessing. This has at least given me a little bit of my life back. It is the only thing I have found that has been able to take some of the pain away from the inflammation and seems to be balancing my immune system again and helping me get a little bit of control back with my autonomic nervous system. I still wake up overheated almost every night and once I get cooled down, we’ll freeze for another hour until I can get back to sleep. But I am sleeping and I am recovering and I feel I’m getting better almost every day as long as I significantly pace myself and don’t try to do more than I’m capable of doing. I do hope things will improve for you as well.