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DiscussionAerobika/nebulizer cleaning question
MAC & Bronchiectasis | Last Active: Mar 29 9:24am | Replies (21)Comment receiving replies
Replies to "128 Terry isn't the bacteria on your equipment your own bacteria? You already have that right?..."
Gina I think we are fine. I wash mine in hot soapy water. I don't use mine much anymore.
Kay
Hi Kay, You said you don't use yours much anymore. Is the doc okay with that? Both my local doctor and the NJH doctor said I had to do the saline and aerobika every single day for the rest of my life. I do skip it once in awhile when I get sick of it but otherwise have tried to comply. The thing is I'm not coughing anymore and nothing really comes up so I'm wondering if that's overkill and I don't need to do every day. I would love to not bother with that anymore.
Did the doctors say that you had to do it TWICE a day or only once? Terry
@128128terry11t One said twice a day. One said once a day. I chose to listen to the once a day. I figure if I have to do it twice a day compliance would be a real problem and I would end up doing it not at all. One of my doctors is very specific and dogmatic about GERD, breathing, and other rules so I take what she says with a grain of salt. I'm not willing to spend my entire day on this stuff. Maybe if I was feeling bad or coughing a lot but not at this stage.
Jen
I hardly use the Aerobika and my doc said that doing lung clearance for me doesn't do anything as I cough up zero most days. I have bad Post Nasal Drip and that runs down my throats and makes me throat clear, but it's not from my lungs. Yellow stuff seems to be from my nose that gets in my throat. My nose runs all the time, I use the Mayo drops and get some relief.
Sometimes I feel like I must have reflux as I have the symptoms of silent but Mayo gave me the 24 hour study and said no. So I go with that.
I'm feeling gone d and thanks for the stomach wishes. I'm better but I'm sure my guts a bit screwy too. I was having yeast infections and they are gone now. Took a full month. It's nice to be on an antibiotic vacation right? Hope it's a permanent one 🙂
Send questions to 128128Terry and me. We are compiling them and will attempt to get 2 microbiologists who work w MAC to answer some of the crazy questions. Send me questions on email if you would. Thanks
Later, Kay
I know EXACTLY what you mean. One doctor told me that it would only be "marginally better" if I did it twice a day and the other was much more insistent. I am listening to the former as well. Thanks. Terry
@kaystrand I was wondering the same thing. I also use my Aerobika only to blow into and inhale through my nose. I would not think I would be inhaling any bacteria into my lungs. I rinse mine at night and let it dry on the counter covered with a paper towel, and I wash it in the dishwasher or in sudsy water once or twice a week and dry it the same way.