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Are my seizures related to chemo? Who can help with this?
Gynecologic Cancers | Last Active: Sep 15 7:50pm | Replies (17)Comment receiving replies
@louissc all in one hospital and its a big teaching hospital...so far no one can agree on what it is specifically , but seems like the consensus among the doctors on the team has been levels just dropped a little too low after the chemo and nothing to be concerned about as all the bloodwork on Monday was fine and there's been no further seizure incidents..
i actually have a couple different surgeons, 3 oncologists, endocrinologist, neurologist, nutritionist, pharmacist, a couple of nurse practitioners, dermatologist, social worker, chaplain AND a care coordinator in my "care team" (prob someone else I've forgotten LOL)... so basically when i contact the care coordinator she coordinates with whichever doc is needed for whatever is going on...between the various cancers and other stuff I've been through over the years I've tended to rack up a few who are familiar with me LOL
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@mommacandy
Hi,
Being in a hospital rather than a clinic is a good one. I had just been discharged from a hospital after being down with Influenza A (which probably caused those scary 3 seizures within 6 hours).
My frustration was doctors from same department couldn’t agree on whether I could be discharged. I gave up, and said “get me out of here”. No other doctor from other department was there despite my primary cause for admission was influenza.
It’s heartening to know a great coordinator is behind your back. One good thing about not sticking to 1 single specialist is there’s no “group think”unless a team from same department will be evaluating your case after consultations. And doctors from different departments work with each other to determine root causes.
If you’re comfortable with the team you’re working with right now, there’s no harm sticking with them. But if it’s been too long, do discuss openly the practicalities of obtaining a 2nd opinion. I did it with my current neurologist and he shared after almost a decade handling my case, if I were to switch, it’ll probably be overseas and I would have to start from 0. I’m already 45, and we did discuss the challenges I would face. There were only that many decades left in my life. He said the final option was mine and he wouldn’t stop me. I trusted and still trust him. If those medications don’t work? I’ll just call it life.
I do hope the doctors handling your case are great ones and things can only go up for you. Most importantly, no doctor can keep your spirit up and that’s under your control. When things don’t feel well in my body I’ll just tell myself it’s ok that’s a side effect. That’s some no med can do for you.
Cheers,
Louis