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My experience is similar to tonibowman’s. I have been dealing with it for 11 years and learning what I can do and can’t has been trial and error. I can’t hardly deal with any sugar. I try to stay with protein and pasta in the form of spaghetti. I do not eat or drink anything when I travel until I reach my destination. And wherever I go I always scout out where the restrooms are. My weight has stabilized at 125 and stays there and I am 6’2”—but I can still function well, do everything I used to do except not lift anything very heavy. I take vitamins and I know I don’t absorb everything I wish I would from my food. Fats can give me moderate problems but nothing like sugar. What I don’t do is drink any sodas, commercially prepared fruit juices which all have sugar and no alcohol and no dairy drinks or even dairy. Have I had bathroom “accidents,” in these years—yes. But I manage. My bloodwork numbers are good but I do take iron daily as I eat little red meat (only very lean), basically eggs, chicken, salmon—protein is the name of the game. I drink one cup of coffee in the morning but not if I am going to travel and the rest of the day water but not a full glass all at once especially if the water is cold. I have tried all the things suggested to gain weight over the years including guidelines given by nutritionists but for one thing almost all the weight gaining drinks have sugar and often a lot of it. You can check it out. Everyone is different but not having that valve and also having a bit of your intestines removed sort of fixes things. As I mentioned at the beginning this has been for eleven years.
Oh one thing I do is I always have a travel bag with a change of clothes, toilet paper, baby wipes towels when I travel in case of an “accident”. I heartily suggest that. Having a bowel movement when you haven’t quite made it to a rest room is not a fun experience. Good luck to all who lose that valve.

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Replies to "My experience is similar to tonibowman’s. I have been dealing with it for 11 years and..."

@patrick031621 Many thanks for all that information! It's so heartening that some people are able to do most of what they used to. The travel bag sounds like an excellent idea and I plan to have one.

I'm well aware of the additives to many foods and drinks. I'm highly allergic to corn, so I have to check all ingredients. There are a few vegan protein powders which do not have sugar or sweetners. But are perhaps too high in fiber. I plan to eat the safest things at first and then add one at a time to see what I can tolerate. I'm very lactose intolerant, so I'm used to using lactose free dairy. I may try that eventually.

The specter of public incontinence is hard. But I also don't want to become isolated. It'll be trial and error how to deal with this. I'm so grateful for everyone's input!