← Return to My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

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@loribmt Thank you so much Lori. She told her own pathologist it was fine to have mixed Chimerism and kept me on the immunosuppressant. He said the prognosis is poor. And yes of course you should have some GVHD the new cells need to be somewhat aggressive but she just killed it off. My platelets have not gotten above 77 and I cannot fight off any infection. I am currently sitting in Stanford Palo Alto parking lot waiting for 11:00 am appointment. I will wear an N95 mask and hopefully they can give me something for the Covid19. I called Stanford all the time and ask my doctor to refer me and she retaliated. They say I have 100 percent donor cell but last month one of mutation showed back up. That doesn’t happen if the cells are 100 percent donor.

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Replies to "@loribmt Thank you so much Lori. She told her own pathologist it was fine to have..."

@tlsorbet HELLO FRIEND
I WANT TO EXPRESS MY SUPPORT AND ENCOURAGE YOU TO GET SECOND OPINIONS!
PERSONALLY I GET VERY UPSET WHEN A MD WILLNOT HELP THEIR PATIENT TO SEEK MORE ADVANCED CARE ! KEEP SEARCHING FOR BETTER CARE !TRY NOT TO LET THE SELFISH INSECURE DOCTOR STOP YOU !!ALL OF US HERE , ARE PULLING FOR YOU AND STAND WITH YOU ! STAY STRONG ,DO NOT GET DISCOURAGED 🙏HUGS