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@marcd2k
I'm hoping this helps @dennismm as well as anyone else reading these posts, looking for answers. Do not let how terrible the US healthcare system is right now discourage you, or make you feel this is your fault. I know how terrible it can be when no one knows what they should be treating, as I have been in pain all day, every day, since July of 2023. I woke up with low right side back back pain that got severe enough to where my wife drove me to the ER (July 7, 2023).
They ran a CT scan of my abdomen and pelvis, no findings for organ problems or kidney stones, and I was sent home with the same pain I went to the ER with. I went to a second ER about a month after this first time, as it felt like my right side was being inflated from the inside. Another CT scan, this time with contrast, showed nothing that would cause the pain I described. This is what they said, anyway, even though I found out later that both ER doctors I saw either do not know what they are doing, or they straight up lied to my face. After reading the reports from my CT scans, I found something each doctor either missed, didn't know what they were looking at, or lied. None of those options are good for the hospital (Cedars - Sinai for those wondering) or their doctors.
This has now progressed to my right-side Oblique and Flank muscles being constantly locked / spasmed, which causes all day, every day pain. From when I get up until I go to bed I am in constant pain. The only relief I get is laying on my back. After 10 to 15 minutes, most of the pain is gone. But as soon as I get back up, the pain starts immediately.
I am now at my 4th PT office since January. About (2) weeks ago, one of the co-owners worked on my QL muscle that is locked on my right side. Unfortunately, this made the pain worse, and the Oblique / Flank muscles now cramp without much of any stress on them. This prevents me from doing the PT exercises and stretches I have been assigned, never mind getting back outside to walk around the block.
This has been going on for over three years now, and I have seen more than (30) medical professionals at the (5) major hospitals in my city. These are the ones everyone thinks are elite hospitals (I mentioned one of them above), but once you use them, they are all pretty average to downright terrible when it comes to not treating their patients like human beings.
I have been to multiple chiropractors, acupuncturists, physical therapists, as well as MD's, DO's, Physiatrists, Hip Specialists, Spine Specialists; I have had every image and blood test run, I have tried several medications and treatments (Trigger Point injections, Dysport injections, Cupping, Trigger Point Massage), but nothing has relieved the pain I am in. And not a single person I've seen or been treated by over this (3) years has any idea why my muscles are locked and will not release no matter what they try.
I have been eliminating what I can by seeing the doctors that I can actually get appointments with (this is a subject for an entirely different post). My hips are good, I do not need spine surgery, and when I can actually do PT, I usually have better range of motion than expected in my hips and hamstrings. I saw a Pain Management Specialist last week (Aug 26th), and she has me scheduled for an Epidural at what looks like to be the L1 location of my spine.
I have had three Epidurals over these past three years, two at T-12/L-1, one at T-11/T-12. From where I described my pain is radiating from, above my right hip on a downward angle forward towards my naval, the doctor immediately said L-1 would be where that pain is originating from. I now have an appointment for an Epidural at L-1 next week. I am really hoping for some relief, at least a second Epidural can then be scheduled to relieve as much pai as possible.
Good luck, everyone, it is crazy out here and you have to advocate for yourself at every opportunity you get. Do not stop researching, writing to people, seeing medical professionals, and asking questions.
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@marcd2k
I have an almost identical situation as you on my left. Years of appointments, images and treatments and no clear answers. Through my own research I’m now thinking my issue is coming from the Thoracolumbar junction (T12-L1) area and associated nerve roots. I’m presenting this hypothesis to my pain Dr next week. Did you get any relief from your T-12/L-1, and T-11/T-12 injections? Why do they think the next injection at L1 will be different than the first ones you had? I believe my condition could be broadly referred to as Thoracolumbar Junction Syndrome (also called Maigne Syndrome). Also my MRIs are clear, which is a typical situation with this syndrome and why the average Dr will miss it.