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Neuropathy: Numbness only, no pain

Neuropathy | Last Active: Sep 9 1:39pm | Replies (677)

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Profile picture for Ray Kemble @ray666

@joeorsini Good morning! A NOPON for 30 years! My god, good for you! I can't boast anything close to that. Five or six years at most, discounting the half dozen years or so prior to my PN diagnosis when I was blaming my occasional wonky balance on everything other than a serious disease. Feet sensation remains big puzzlement to me. I've had two EMGs and one PT assessment (pins to the bottoms of my feet) and all three evaluations led to "You've some significant sensation loss, Ray." Really? 'Tis a mystery to me. I maintain I can still feel my feet, or more meaningfully put: my feet still feel things when they come into contact with things: they feel cold, hot, stickiness, smoothness, soft vs. hard, ticklish vs. dull, etc. I've often wished my clinicians had a numerical scale to use; e.g., "Ray, at last exam your remaining sensation was a 5. It's now dropped to a 3." Lacking the sort of yardstick, I remain mystified. // Cheers! Ray (@ray666)

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Replies to "@joeorsini Good morning! A NOPON for 30 years! My god, good for you! I can't boast..."

@ray666 I have always had very high arches which meant even in my younger days, I could not wear those very flat and cute sandals - i had to have a good arch support. Now that I have self diagnosed neuropathy. the arch is giving me a lot of tingle/pain and it turns out according to what I have read, that this is very common but I am not sure why. I got expensive arch support inserts in my walking shoes and they help a bit - Happily I do not have balance issues although I must admit I sort of wander all over the sidewalk like a drunken sailor when I walk. I have the most trouble in my left foot but everything wrong with me always happens on the left side which is good since I am right handed. I am not sure if my arch will go flat or go higher - I will just have to wait and see what is next.