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Talking Frankly about Living with Advanced Cancer

Cancer | Last Active: Jun 18, 2023 | Replies (508)

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@jazzjen

@jenjazz I was diagnosed in december with stage 4 rare clear cell ovarian cancer that had metastised throughout abdomin, surgery, 12 chemo treatments later. Now on oxygen 24/7. good news? they say cancer is gone!!!! So why do I feel like it is not gone? I feel like it is still there waiting to take me down.

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Replies to "@jenjazz I was diagnosed in december with stage 4 rare clear cell ovarian cancer that had..."

@jazzjen Welcome to MayoClinicConnect. These past few months must have been so difficult for you. Do you have family? How has all this affected them? Why do you feel that the cancer is not gone? Is there too much “down in the dumps feeling” around the house? I don’t have cancer (I have an autoimmune disease), but as a nurse, I specialized in care of cancer patients. As nurses, we became so tuned into our patients and their moods. Some were such an inspiration for all of us! Even if they did or didn’t know what their outcome would be, they looked forward and lived each day at a time. Many of them I still remember.
Have you thought about talking with a therapist? Someone who would just listen? Feeling anxious about the future is not wrong, it just is. We’re here to listen. Will you keep in touch with us? We care

Sorry I didn't read your message until today. I've been very busy with family obligations which is a wonderful distraction for me. I, too, was diagnosed with clear cell about two and a half years ago. It is rare and most women you encounter on-line have HGSC. There is a group of women (of all ages with OCCC on Inspire) that is very supportive. I have done a fair amount of research on this particular histology and it is very frequently associated with endometriosis. You are fortunate in having supportive friends and family...it is very helpful. Why are you on oxygen? As for your fear of recurrence, I believe most of the women you will meet in on-line forum will express the same concern. I exercise a lot, do yoga and meditation, and surround myself by nature. And for me, learning about this rare condition has been important.