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Talking Frankly about Living with Advanced Cancer

Cancer | Last Active: Jun 18, 2023 | Replies (508)

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@bdpp

Hi. My 1 year cancerversary is this weekend. Started at Stage 3, moved to Stage 4 in December. Metastatic Melanoma, unknown primary, Wild-type (negative on mutations). Received my 1st clear PET scan this past June (Yeah!) after every 3 weeks of immunotherapy, chemo added in for 4 of those treatments, 3 surgeries and too many not clear scans. Live in Rochester, MN and have a great oncology team at Mayo. I have been looking for a support group that involves people living with advanced cancer. Maybe I have found it? Have not read through all the posts here, but I will. Wanted to say hi and happy to have found you all.

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Replies to "Hi. My 1 year cancerversary is this weekend. Started at Stage 3, moved to Stage 4..."

Hello @bdpp Welcome to Connect! It is great to have you here --- and I hope you find Connect as a great a community as so many of us have! For me it really helped break the isolation of caregiving for my wife, who fought brain cancer for 14+ years!

While not a nice situation for you, very nice that you are right in Rochester! We made our treks from NW Indiana, but like you found a truly fabulous oncology team! My wife's neuro-oncologist was a tremendous gift for her and our entrie family.

Wishing you continued strength, courage, and peace!

@bdpp May I add my welcome, too! We are glad you have found us at Mayo Connect. We are patients, family members and caregivers [sometimes all three!] who share our experiences, strength and support to one another. Wonderful that you had a clear PET scan in June after all that treatment. I am a melanoma survivor, surgery in 2008, and still have my checks every 6 months. Recently my PET scan was also clear. We hope that you will visit with us, and pull up a chair to the big cyber-table we have, grab a cup of coffee or tea, and enjoy our group.
Ginger

Hello @bdpp

I would like to add my "welcome" as well. Mayo Connect is a supportive, caring community and I think you will enjoy the posts and interactions. It is wonderful that you live close to Mayo and are able to get your treatment there. Congratulations on your clear PET scan in June. I'm wishing you many more!

I have had three surgeries for neuroendocrine tumors (carcinoid type) which is a rare form of malignancy. When I found Mayo Connect in 2016 I was facing my third surgery and found others who could share with me so that I did not feel so alone. I hope you find the same source of encouragement that I did.

I look forward to getting to know you better.

@bdpp, I'd like to add my welcome. We talk about everything and anything in this group. Mostly we talk about living and we're not afraid to face the tough stuff head on. I look forward to getting to know more about you beyond cancer. What brings you joy?