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Talking Frankly about Living with Advanced Cancer

Cancer | Last Active: Jun 18, 2023 | Replies (508)
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@colleenyoung

Hi Dan,
@burrkay and @travelgirl can tell you more about Mayo Clinic Jacksonville and the cancer center there. @chemobile speaks of his experience with pancreatic cancer and treatment at Mayo Clinic Jacksonville in this post https://connect.mayoclinic.org/discussion/need-patients-experience-with-mayo-clinic-is-it-worth-it/?pg=2#comment-261829

You might also be interested in these discussions on Connect
- what to expect end of life pancreatic cancer metastized to liver? https://connect.mayoclinic.org/discussion/what-to-expect-end-of-life-pancreatic-cancer-metastized-to-liver/
- Pancreatic Cancer Stage IV and in partial remission https://connect.mayoclinic.org/discussion/pancreatic-cancer-stage-iv-and-in-partial-remission/

What chemo regimen is your sister currently receiving?

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Replies to "Hi Dan, @burrkay and @travelgirl can tell you more about Mayo Clinic Jacksonville and the cancer..."
dc4444 | @dc4444 | Apr 8, 2019

HI,

4 chemo meds: Irinotecan, Leucovorin, Oxaliplatin, Fluorouracil.

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dc4444 | @dc4444 | Apr 8, 2019

HI,

Has anyone tried alternative treatments such as oxygenation therapies and/or immune enhancement therapies (IV vitamin C) ?

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All_in_1963 | @burrkay | Apr 9, 2019

In reply to @dc4444 - my wife and I are both patients at Jacksonville. We are very happy with her oncologist, although the one who initially treated her has left. My care has been limited to monitoring for barrett esophagus and gastrointestinal disease.
We know very little about pancreatic cancer, as my wife has stage 4 non small cell lung cancer...being treated with doublet of perjetta and herceptin (trial)...hers is a somewhat rare condition...they determined via a molecular study in 2016, that hers is a HER2 mutation in the lung...normally found in breast cancer patients. Although stage 4, she seems to be doing very well as long as she gets the infusions every 3 weeks...very little side effects, but they do closely monitor her heart.
Her infusions are administered locally with a cancer center here in South Carolina...annual followup with the oncologist in Jacksonville.
The care in Jacksonville has been excellent!

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