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Talking Frankly about Living with Advanced Cancer

Cancer | Last Active: Jun 18, 2023 | Replies (508)

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@dc4444

My 60-year-old sister has been diagnosed with pancreatic cancer stage 4 - metastasized to her liver. Currently on her 4th visit for chemotherapy at Harold Lever Cancer Center in Waterbury, CT.

For those with the same cancer:

1.) Has anyone tried alternative treatments such as oxygenation therapies and/or immune enhancement therapies (IV vitamin C) ?
- If so, what was your experience?
2.) Has anyone been to the Jacksonville Florida clinic and what was your experience?
3.) Any recommendations on approaches to this cancer?

Regards...Dan

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Replies to "My 60-year-old sister has been diagnosed with pancreatic cancer stage 4 - metastasized to her liver...."

@dc4444 I wish I had answers to all your questions. In my experience, each patient has a plan designed specifically for them by their doctors. So my recommendation is to find doctors you like and trust and listen to them. I was diagnosed at Stage 2b in May, 2014. I had a Whipple procedure done at Mayo in Rochester followed by 18 infusions of gemcitabine at my local hospital. I am scheduled to go to Mayo in June for my (final?) checkup. Up to this time I have remained cancer free. Praying that your sister can find answers and a treatment that works for her.

Hi Dan,
@burrkay and @travelgirl can tell you more about Mayo Clinic Jacksonville and the cancer center there. @chemobile speaks of his experience with pancreatic cancer and treatment at Mayo Clinic Jacksonville in this post https://connect.mayoclinic.org/discussion/need-patients-experience-with-mayo-clinic-is-it-worth-it/?pg=2#comment-261829

You might also be interested in these discussions on Connect
- what to expect end of life pancreatic cancer metastized to liver? https://connect.mayoclinic.org/discussion/what-to-expect-end-of-life-pancreatic-cancer-metastized-to-liver/
- Pancreatic Cancer Stage IV and in partial remission https://connect.mayoclinic.org/discussion/pancreatic-cancer-stage-iv-and-in-partial-remission/

What chemo regimen is your sister currently receiving?

@dc4444 I am a patient at Mayo Clinic in Jacksonville. I have been very impressed with all my treatments there.
They are fast efficient and treat the whole patient not just the disease.
I would get a second opinion from them for sure.
I wish you and your sister the best.
Jackie

Dear Dan ,

My Dad was diagnosed with Pancreatic cancer stage III, 8 months ago .He has not yet tried any alternative treatment such those you mentioned. If you proceed with those , please share your experience.
Yes I think you should Find an oncologist that you trust and like and who is more familiar with pancreatic cancer. Also check radiotherapy. Stereotactic options might be helpful! I heard some very good results in some cases for stereotactic options. Regards Anastasia