← Return to New here. Have this Post Covid for over 5 years. I need help desperate

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Hello. You are among many of us that have similar experiences and live with this daily for years now. As of now, the only thing that doctors seem able to do is treat the symptoms of Long COVID. There is research going on but nothing, that I have found that is definitive for getting rid of this. I just read another research study that they found Paxlovid has no effect on Long COVID. I do know that POTS is one thing that can happen to people that have Long COVID. Some people seem to get some relief from low dose Naltrexone. Salt and sugar can cause symptoms to flare up, like fatigue. I personally believe that Long COVID is an autoimmune illness and causes inflammation in the body (organs as well). I was diagnosed with RA the first year I had this, in 2022. Now, the tests for RA are negative. I had a reactivation of Epstein Barr Virus. Research is showing that many people had reactivation of other viruses. I am glad you got disability. I applied once, was turned down. I have applied again. People will comment here and so many have a lot of experience with what might help and what does not. We are all different in ways, however we all do have this in common. I have found a lot of support here. I do wish that the MAYO CLINIC would offer virtual support groups. I know that there are some on Facebook, but I choose to stay away from social media at this time. Hang in there.

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Replies to "Hello. You are among many of us that have similar experiences and live with this daily..."

@diverdown1 Thank you for your response. I would advise that you get a lawyer who specializes in social security disability. I did this and they guided me through the process. They are paid a fixed percentage of your "back pay" which is the amount you receive from arrears starting from the day you applied.
Good luck

@diverdown1 Not understanding...isn't this a Mayo Clinic virtual support group? Please explain.