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Anyone with Multiple Endocrine Neoplasms gene MEN1 and how diagnosed?
Neuroendocrine Tumors (NETs) | Last Active: Sep 17 9:21am | Replies (15)Comment receiving replies
My daughter is being tested for MEN1. Her parathyroid adenoma was huge. I also had an adenoma on my pituitary gland. They think there could be a familial connection. Her calcium was high but they caught it before kidney stones developed.
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@caredy77
Thanks for this helpful response. I thought of you as MRI pituitary with & without contrast has now been ordered. The "diagnosis" on the order read "MEN 1 multiple endocrine neoplasia."
I will be interested in your daughter's test results. I have two adult sons [40 yr and 38 yr] and two grandchildren, so like you, want to understand familial connection, if any. My sons have not had any indicators or symptoms for the MEN 1, but neither did I until the liver NET appeared at age 71! Best to you and your daughter.