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Gastrointestinal NET Diets

Neuroendocrine Tumors (NETs) | Last Active: Sep 4 9:27am | Replies (15)

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Jerry
This was a helpful podcast for my nutritionist and I:

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Replies to "Jerry This was a helpful podcast for my nutritionist and I: https://www.youtube.com/watch?v=k_MSKxtbqR8&t=636s"

@maeve115
I found your link both informative and interesting. Everyone is so very generous with ideas and willingness to share. I have learned that like NET's, diets are also very individualized. I am still working with mine limiting amines and trymines (sp?). I do not have carcinoid syndrome, yet. There are only two very small spots on the top of my liver that are considered too small to be significant at this point. My digestion (with the aid of Creon) is quite good with the exception of lanreotide injection days. Since I had surgery in May 2025, my bowel movements have been applaudable with diarrhea and oily stools only immediately following injections. I am very grateful to everyone for their willingness to assist in my education on this disease. Thank you!