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Osteoporosis Meds

Osteoporosis & Bone Health | Last Active: 2 days ago | Replies (71)

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Profile picture for boneoptimist @boneoptimist

I am in the same boat. I don't think I understood the second drug requirement right away. I was diagnosed with severe OP 2 years ago. I tried to do all non-drug things the first year on my own, and had some progress. Now I'm on Tymlos, 11 months in, with excellent results. I'm told that after 2 years on it, I can't continue, and that I will have to go on a bone saver drug (Tymlos is a builder drug). My mom was on Fosamax, and her jaw was like Swiss cheese. I told my PC that I don't want to take that category of drugs after Tymlos. We are both kinda kicking that can down the road- not worth arguing about it yet. I have a dream that I can get back to normal bone density in the next 13 months, then convince her to allow me to keep up everything (non-drug) that I'm doing now, and Dexa after 6 months to see if I can avoid the next drug. I'm working very hard now to reach that goal, so we'll see. I do expect to do lifetime maintenance as far as diet and exercise. I have gone from severe OP to osteopenia, and worked really hard, so if that first Dexa 6 months after stopping Tymlos shows a loss, I'm sure I will reevaluate follow up drugs. This is a lifetime journey, but it is so much better than many other journeys that people have to take...

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Replies to "I am in the same boat. I don't think I understood the second drug requirement right..."

@boneoptimist
So true. It’s so easy to feel sorry for yourself. My stepdaughter is 40 years old and has stage 4 colon cancer that has spread to her ovaries. They can’t remove the tumors because she has what they call a frozen pelvis. It’s stage 4 endometriosis. Her female organs are basically all fused together. I can guarantee she would take dealing with OP over what she’s dealing with. So I just keep reminding myself it could be so much worse.

@boneoptimist
What are the non-drug things you are doing? I assume exercise, supplements, etc... I'm going to start Teriparatide this week and it was only after insisting on sitting down with the endo's NP to map this all out that I learned about the follow-up meds. I'm concerned about keeping up with a 4-5times/week exercise regime while on teriparatide given comments about extreme fatigue and aches, etc.

@boneoptimist
Thank you for your post helps me with the reality of this situation. I don’t or have taken any medication. I take a lot of supplements and weight classes but I feel at some point I will take a bone building rx. But will stop if it works and see how it goes. Please keep me posted to your progress