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Colleen Young, Connect Director avatar

Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 20 hours ago | Replies (6963)

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Profile picture for revdorth @revdorth

@catro hi charlie - i am 89 and dealing with pn much the same way - i have had neuropathy in the feet for years but it was mainly a tingle and a bit of rigidness in the toes at night and i didnt pay attention and hiked, walked, etc for years. It got much worse this year and has progressed to my calves and often to my arms in just a few months. There are not enough neurologists in Denver - it is a 6 month wait to see one and then they often are not taking new patients plus since there is no cure they arent interested. I am amazed I have reached this age in as good a shape as I am = slower and often very tired with little energy which is the worst but i keep going. I have no car so must continue to walk even if just to the bus. I will be moving in a month to senior housing which has an indoor heated pool open all year so I am hoping daily water aerobics will help keep me going. I read this site for information - someone mentioned rubbing the feet with VIcks and it does help at night. Other than that, it is just onward and upward. Dorothy

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Replies to "@catro hi charlie - i am 89 and dealing with pn much the same way -..."

@revdorth - it seems that the best we can do is keep moving as best we can when we can. I find that some days are better than others but it’s always worse in the evening/night. That’s when the burning sets in and my calf seizes up. I am noticing that while we all have a different variation of the same affliction, no one seems to be getting any professional advice or assistance on how to improve our quality of life. As you said, no cure - no interest. Therefore, we have to fend for ourselves. My only “lesson learned” is that I feel better on the days I exercise and/or walk. I’ve been prescribed a n anti-seizure medication called VIMPAT (in Spain) that has helped considerably with the muscle seizures. Good luck with your upcoming move. It sounds really nice 😊