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DiscussionLiving with Neuropathy - Welcome to the group
Neuropathy | Last Active: 20 hours ago | Replies (6963)Comment receiving replies
Replies to "@catro hi charlie - i am 89 and dealing with pn much the same way -..."
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@revdorth - it seems that the best we can do is keep moving as best we can when we can. I find that some days are better than others but it’s always worse in the evening/night. That’s when the burning sets in and my calf seizes up. I am noticing that while we all have a different variation of the same affliction, no one seems to be getting any professional advice or assistance on how to improve our quality of life. As you said, no cure - no interest. Therefore, we have to fend for ourselves. My only “lesson learned” is that I feel better on the days I exercise and/or walk. I’ve been prescribed a n anti-seizure medication called VIMPAT (in Spain) that has helped considerably with the muscle seizures. Good luck with your upcoming move. It sounds really nice 😊