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Neuropathy | Last Active: 7 hours ago | Replies (23)
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@ericmm
Hi Eric - My Idiopathic PN (large fiber) comes with pain, and extremities can get very cold (sometimes very warm). It was a very sudden onset (10 days) with an infection. I initially lost all ability to walk and the use of my hands, but PT did wonders getting me out of the wheelchair and getting pretty well balanced. I use a walker today and relieved for that. I am prescribed Gabapentin which I find, taken on schedule, works well to keep the pain very minimal now and keep temperature discomfort tolerable. I have found nothing though that helps the numbness and tingling!
I have tried many of the suggestions here for vitamins and supplements. Over time I found that the sweet mix for me is to take B12 and Magnesium supplements (and I’ve taken a One-A-Day multivitamin for years). I had to find the right dosages that worked for me, as too much (esp Mg) actually made me weak. What I’ve learned most on this forum is that there is no one formula that works for everyone. It takes a lot of trial & error! Debbie