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Kevzara and prednisone effectivness

Polymyalgia Rheumatica (PMR) | Last Active: 3 hours ago | Replies (42)

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@jeff97

I was started on Actemra in 2019 and I had to abruptly discontinue Actemra because all supplies were being diverted to seriously ill Covid patients. I didn't mind because I was happy Actemra helped some people with Covid. My rheumatologist was so apologetic that I had to stop Actemra and she said that I needed something. Because of the lack of alternatives, Humira was restarted even though it didn't work so well the first time it was tried.

Covid 2020 was a bad year for me but not because I had a Covid infection. It took more than 6 months before supplies of Actemra improved. When Actemra was "interupted" --- Humira was started and I ended up being stuck on 20 mg of prednisone again. My rheumatologist couldn't believe how much I deteriorated. She said I didn't look good when she first saw me after face-to-face visits were allowed again.

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Replies to "@jeff97 I was started on Actemra in 2019 and I had to abruptly discontinue Actemra because..."

@dadcue we were both victims of COVID without having COVID. I got a bloodclot after a surgery that went into PE but all doctors, surgical facilities and hospitals were closed. I had to tough it out. I did deep breathing meditation to manage the chest pains that came and went for 6- weeks. But, it worked and in 2023, (3 years later) I had some dead veins removed in that leg where the DVT had been.

Glad we made it.