Dear all,

As long-term survivor of an MPNST, I am suffering too much from late side effects of radiotherapy. For those who have other choices of treatment, I recommend do not use the radiation for the cure of cancer. The side-effects can arrive 20 years later as a "surprise" that nobody is waiting.

It's like trading diseases, like paying a very high price for survival. You exchange a deadly disease for a cure with terrible daily pain, incurable, agonizing nerve problems, and a significant lack of quality of life. For those young people who, like me, have gone through sarcoma and may live for many decades, they should carefully consider treatments with their doctors. For older people, it may not make much difference. For younger people, it's certain that they will reach 40 or earlier with significant physical impairments thanks to radiotherapy. Doctors, in most cases, don't inform you. And even the most recent radiotherapy treatments seem to significantly compromise quality of life. All this is especially true in sarcomas at an initial stage.
I want to share my testimony so that young people like me don't have to go through the terrible suffering I'm going through. Thank you and best wishes for good health to all.

Regards.