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@dbeshears1
Hi Debbie ~
It's a lot like moving through the stages of grief but it's not a straight line. Sometimes it circles around and just as you thought it was behind you, there it is, part of your life again. So glad to see your post...you always have words of wisdom! If I remember correctly, in those early years you endured several moves. Do you feel those upheavals resulted in slowing your progress toward what you have achieved lately in terms of physical improvements? For myself, getting overtired/having overextended myself always results in escalated pain, difficulty in achieving/maintaining
balance, and awkwardness in just about everything. Returning to routine sets so many things right again. God's blessings to you! Have a great week! ~ Barb
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@bjk3
I think moving is hard work, period! Re-establishing healthcare with each move was challenging too. Everyone having their own treatment protocol than previous healthcare and switching meds, etc. and me having to re-adapt how all the changes affected my total body, especially the neuropathy which is basically an untreated condition (except for my Gabapentin). I’ve been fortunate to have good PCP’s with each move that helped manage the coordination of the few specialists who wanted to change things in their area of concern.
I secretly hoped that each move would hook me up with a new Neurologist with new ideas and new research and new hope. But I had no such luck as I had to move 4 times in 10 years. Each Neurologist pretty much read the last one’s notes and continued on the “OK, let’s keep everything as is and call me if it gets worse”. I always dreamed of hearing “Here’s something I’d like to do so you WON’T get worse (or might get better!)”….. But that’s what this group gives me, all kinds of ideas to try and tools to help maximize life. I’m kind of resigned to the lack of medical knowledge, but I still pray for it.
Meanwhile I am proud of what I’ve accomplished! I can still travel with husband, see the world, go to baseball games, and take advantage of our community pool and activities. I haven’t given up on doing whatever I can as safely as possible (often in the seated position). I sure hope you’re doing well. My older husband has had challenges so we try to support each other. I know you’ve been on a similar journey as my own. Keep our heads high! (Except when walking… got to look down to make sure our feet are working right)