← Return to My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?

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April 15,2025 was my Bone Marrow Transplant. I was previously on the AML chemotherapy protocol 7+3 HiDAC regimen. Then I went in for the BMT but the physician drop the ball so many times I felt they were incompetent. For example the BMT doctors do not want you to have chemotherapy a month prior to the BMT due to the fact that they will give you chemotherapy in in hospital prior to BMT. Well my doctor let me come to the pre appointment and then advised me that the donor did not show up for his appointment to donate the stem cells. She never called me and never made arrangements for continued chemotherapy. That day I had to call Dr. Moore at Saint Vincent’s Providence to get in for my chemotherapy. The BMT doctors were incompetent and stupid and did not even care. That was my first red flag. I should have stayed with Dr. Moore at Saint Vincent’s Providence in Oregon because she had a plan to cure me, but instead I listened to that dumb one who said only with a BMT will you be cured. It has been down hill ever since and now I am going to Stanford.

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Replies to "April 15,2025 was my Bone Marrow Transplant. I was previously on the AML chemotherapy protocol 7+3..."

Hi @tlsorbet. It’s so important when having a BMT to be at a reputable larger hospital where they perform a greater volume of transplants. The experience and knowledge to handle complications, along with having a deeper bench of specialists is crucial. With a great BMT team everything should run like clockwork.

I’m sorry your experience was less than stellar. It sounds like you were able to go ahead with the transplant though. In defense of your doctor, whom you feel is dumb, there are many cases of AML where a bone marrow transplant is still the recommended course of treatment for long-term outcome.
The newer drugs that have been developed to treat AML have good track records but for some of us, it is still necessary for the BMT.

You’re about 16 months post transplant. How are you doing now? How has your recovery been? Any GVHD issues?