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Colleen Young, Connect Director avatar

Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 20 hours ago | Replies (6963)

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Profile picture for stangreen @stangreen

@tammy65, it is simply a living hell. There is NOTHING that helps me. I have found its impact to be progressively worse after completing Folfirinox. The afternoons and evenings are infinitely worse, if that is even possible. My neuropathy is a basket of everything in my hands and feet. I find myself dropping things, losing my balance, and falling on occasion. The tips of my fingers are numb, while burning at the same time. Also, when touching anything, I feel electric shocks. The numbness from the knees down reaches a peak in the toes. I also think my left foot is beginning to drop. There is a feeling of swelling and sand at the bottom of the feet, particularly in the front. Driving is becoming problematic given the almost non-existent sensation, I am not sure how it all ends. Stan

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Replies to "@tammy65, it is simply a living hell. There is NOTHING that helps me. I have found..."

@stangreen - I am so sorry that you are suffering like this. Neuropathy is an evil affliction and I wouldn’t wish it on anyone. Please know that the people in this group see you and understand you. While we can’t take away your suffering, we are here to listen and support as best we can.