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Adjusting to life with temporal arteritis
Polymyalgia Rheumatica (PMR) | Last Active: 2 hours ago | Replies (305)Comment receiving replies
That's great to hear. I've been taking Actemra infusions for several months now and am attempting to taper off Prednisone completely. When I get down to 6mg, I begin having headaches again. My rheumatologist believes my GCA is gone since my inflammatory markers are normal. But it feels like it's still there to me, just being masked by the Prednisone.
Replies to "That's great to hear. I've been taking Actemra infusions for several months now and am attempting..."
@jsm789 I got down to 6 mgs last week on my second taper but after a few days my blood pressure was getting low, getting very dizzy every time I took a few steps. I went back to 6.5 and it stabilized my blood pressure. I think my problem is my adrenal glands. Your headaches could be Prednisone withdrawal but it's hard to say. I hope you get it figured out.
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@jsm789 At 6 mg you are getting close to the point where secondary adrenal insufficiency can show up. According to google, "Headaches are a recognized part of glucocorticoid withdrawal syndrome, alongside fatigue, dizziness, and muscle aches."