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I think I have PMR and I’m terrified

Polymyalgia Rheumatica (PMR) | Last Active: 17 minutes ago | Replies (81)

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I felt the extreme and debilitating PMR pain in January 2025 but wasn’t diagnosed until May that year. I thought I had hurt my lower back somehow. I was prescribed 15 mgs of Prednisone and tapered slowly for the next year. The Prednisone kept the pain at bay and I functioned normally except that I was tired every afternoon - and because of that malaise, was not able to exercise regularly— and did add 15 lbs. It’s now August 2026 and I finally feel myself again! There is stiffness if I sit or lie for long periods of time but it goes away in about 5 or 10 minutes. I am exercising again, losing that weight gain, and feeling clear-headed. I guess this is remission, but I wanted to give hope to those just learning about this condition. It was a sleepy and lonely year - I call it my “lost year” - but now that I am feeling better, I want to help others get through it. I am 66 years old.

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Replies to "I felt the extreme and debilitating PMR pain in January 2025 but wasn’t diagnosed until May..."

@boomerlib your time frame fits mine. Now 73 & am going for a taper of 1 alternating w/1.5 this coming week. Have been doing really slow tapers. I do feel a bit of the bilateral hip pain esp when sitting! So it reminds me to get up!
I do try to walk everyday. A lot of 2+ miles in morning then again 2-3 miles in evening. Mentally healthy for me.
I see rheumatoid guy in December to check lab numbers. Maybe I’ll be off pred by then. I am also on methotrexate & rheumatoid guy says typically one stays on it for 6 mo after ending prednisone! I want off that stuff too!