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I think I have PMR and I’m terrified
Polymyalgia Rheumatica (PMR) | Last Active: 2 hours ago | Replies (85)Comment receiving replies
@kjoed53 thanks for the reply. Interesting as you say that every tapering experience is very different. I’ve had no symptoms for 4 days on 20mg which was used as the test to see if I actually have PMR. So I’m hoping that I can maybe go to 15 as a starting point and see how I go with that. It’s so odd that there is so much vagueness from the medical profession about this condition. No real definitive cause or even whether it’s actually curable! Weirdly the rheumatologist didn’t ask my weight…
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@martyn
Thankfully, my doctor didn't ask my weight either, but I'm visibly big. No one knows the cause for sure, but I'm pretty sure mine was the result of covid. Viruses are recognized as a trigger for other issues. PMR is not curable but it does go into remission, with some people never experiencing a subsequent flare. Our symptoms can vary in levels of pain and duration. Our prednisone dosage can vary from 10mg to 40mg or higher. Our taper can vary in speed and success. My personal opinion is that PMR is a group of disorders that are similar but different, as opposed to a single malady. Listen to your body and taper wisely. Best of luck!