I am so confused. Hubby has been on RASONque for 14 days and his CA 19 went from 15800 to 18800 up not down...Also notice I said thousands, not hundreds like you all have. At diagnosis in 10/2024 it was 6000 then chemo kept it steady for 1 year, with treatments every other week. then it started to climb, 9000, 11000, 13000 15800 and now 18800. and in the 1st week of Aug we went on "the pill", however CA 19 is still climbing

We are now considering a combo of the old chemo every 2 weeks and 100 mg of "the pill" to see if there can be some slowing again. On the other had living 22 mos from diagnosis is already above average, and hubby is still able to go to the casino twice a week, using a walker, with a time frame of about 3 hrs.

So everyone is different, and when you think things are bad, I suggest you check out others with this disease and count your blessings. My husband and 2 other patient at his clinic were on the wait list for 2 mos for the pill, and the other 2 patients died while waiting. So given everything, we have a lot of blessings to count.
Good luck
Marlene