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Diagnosed today w/ PCa. Seeking feedback w/ treatment I think I want
Prostate Cancer | Last Active: Sep 1 9:13pm | Replies (83)Comment receiving replies
@heavyphil
You bring up a really important point. When I attended a UCSF conference a year ago, they discussed the fact that radiation didn’t seem to be effective on cribriform. At meetings, I was going to they discussed the fact that surgery was probably best. Then about a year ago, the information changed, studies had shown radiation was recommended As the most successful way to treat cribriform.
Well, these two things sure seem to be a direct contradiction.
Ar Tuesday’s ancan.org Advanced prostate cancer weekly meeting one person with large cribriform Was asking for help on making a decision between surgery and radiation. As it turned out, he went to multiple doctors and they all recommended surgery. At the meeting, they said that that may be true, but that radiation has been found to be more effective.
And then you bring up the fact that maybe they need a boost. There definitely seems to be a contradiction here. Many Doctors are not following what the latest trials have shown. And it sure leaves the patient in a position where they don’t know what the hell to do. What you bring up sure seems like it should be what they are recommending..
Then you search AI and find out that they come up with this Mayo clinic forum’s comments about this as what should be done. Specifically I saw the comments that I made about surgery being needed. Weird!!
Must admit at this point I am not sure who is right about this. It’s very possible that both are right and both techniques work.
Replies to "@heavyphil You bring up a really important point. When I attended a UCSF conference a year..."
@jeffmarc
The same goes for ADT length now - recommendations are drastically changing but doctors are reluctant to follow new findings and understandably so.
And yes - I also cringe when I see my post pulled out as reference in "google search", especially because I am very private person and what I say here I wish to stay here but alas, we all forget that privacy does not exist in this world any more.
Also, it is scary that people do not understand how AI works and that if something (even wrong) is repeated enough times that "something" will be served as an answer by AI and on top of that if AI "does not know the answer" it will make up one. If you ask AI the same thing enough times it will start "guessing" what you wish to hear and serve you that answer.
Sorry for digressing - bottom line, there are so many possible PC treatments available and now with constant changes in recommendations it is becoming really confusing and overwhelming for new patients : (((. Luckily most of the treatments WORK ! Also, all treatments have side effects and mostly are actually the same - they just come in different order and in a different time frame.
In the end it all comes to personal choice and it will be very subjective choice, but it is OK since the results and side effects are absolutely comparable. We all try to make the "best choice" but there is no such thing because success depends of so many other parameters than just of the type of a treatment.
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@jeffmarc Yeah, probably surgery followed by adjuvant therapy with ADT…the kitchen sink approach!!
Phil