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I think I have PMR and I’m terrified
Polymyalgia Rheumatica (PMR) | Last Active: 1 hour ago | Replies (85)Comment receiving replies
@martyn the symptoms seem all over the place. I refused pred (side effects) for 2.5 months. Started what I thought was very high 30MG, for 1 week, then taper each week by 5MG. My pain was gone completely 1-2 hours after 1st dose, incredible. Tapered to 10MG, then more slowly to 2.5MG Since my total time on prednisone so far is March 20 to today the tapering has been easy, but PMR pain is definitely there. My last few weeks have been 2.5MG 5 days, 4, then 3 days a week and so on. My doc said 'trust the sediment test, down from 125 to 22, just about normal. I was scared but it is working. There is hope but it takes time.
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@pmrnew thanks for your reply . Great to hear another experience. I’m interested to know how your PMR was during the time you did not take the Pred? Was it up and down the pain levels or increasingly worse. I have things I still don’t really understand like why on some really bad mornings I managed to clamber on to my road bike, then rode for 2 hours and returned 60% better.. it’s so odd. I’m not disputing Pred is the route that is necessary and I no doubt will be on it soon but it seems there is grey area about other ways to improve the pain levels other than steroids. Hope im making sense ! Thanks and hope you’re doing well !