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How do you manage the profound loneliness of caregiving?
Caregivers: Dementia | Last Active: 16 hours ago | Replies (96)Comment receiving replies
I understand exactly what you mean. As my husband’s cognitive and physical conditions erode, it is harder and harder to spend time with others, either with him present (because other people are uncomfortable with some of the strange things he says), or by myself (because I don’t feel safe leaving him alone). And I don’t want to drive friends or family away by dwelling on my problems with caregiving. It is a sad and isolating experience . Wishing you strength
Replies to "I understand exactly what you mean. As my husband’s cognitive and physical conditions erode, it is..."
@schenelly I am having the same experiences. My husband is requiring more and more of my time and care. I try to carve out time alone since he can be left alone for short periods of time. I am still able to make plans with friends. No one seems to be minding the repetitive stories or the forgetfulness yet. I feel like my world is getting smaller and smaller along with his.
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@schenelly I’m so sorry to hear what you’re going through. I have similar experiences while my situation is with mother which is different.
I find the online support groups as well as some YouTubes on dementia care are very helpful. At least we know we are not alone on the dementia caregiver journey.
🤗❤️